Access to the Indiana Network for Patient Care, Eskenazi Health, Indiana University Health, and the Indiana State Department of Health Cancer Registry positions the Data Core to skillfully assist in a wide variety of research areas.
Indiana Network for Patient Care (INPC)
The Indiana Network for Patient Care research database (INPCR) represents one of the largest health information exchanges in the country with over 100 separate healthcare entities providing data which includes: major hospitals, health networks, and insurance providers. When combined, the information from these institutions represent data on over 18 million patients in the form of 10 billion clinical observations, 951 million encounter records, and over 147 million mineable text reports. In addition to these clinic aspects, the INPCR receives data on drugs that have been prescribed to patients within its various institutions. With regards to the population, the percent of residents who have touched the INPCR has grown to approximately two thirds of Indiana’s population.
Per the INPC terms and conditions agreement, the Regenstrief Data Core acts as the custodian of these data and only they are allowed direct access to the identifiable patient data contained within the INPC research database. Within the structured data, the INPC has several ways to string data across years, institutions, between patients, and even with outside data sources. In addition, the Data Core can use a natural language processing tool developed by Regenstrief’s own Center for Biomedical Informatics to parse text notes from INPC and extract data elements that would not otherwise be available via structured data.
Eskenazi Health and Indiana University Health Data Warehouses
In addition to having access to the INPC data, the Regenstrief Data Core has business agreements in place with Eskenazi Health and IU Heath to access their patient data for approved research purposes, allowing access to greater variety and depth of clinical data than that which is contributed to the INPC database.
Indiana State Cancer Registry
The Regenstrief Data Core also has access to data from the Indiana State Cancer Registry. The Indiana State Cancer Registry at the Indiana State Department of Health (ISDH) contains all confirmed cancer cases of malignant disease and other tumors and precancerous diseases that are diagnosed or treated in Indiana, as required by state statute (IC 16-38-2).